This public form was created to track the approximate number of patients with Bohring-Opitz Syndrome. Information provided on this form is shared to a public spreadsheet and on the BOS Foundation website for the sole purpose of tracking the approximate number of patients with BOS. Completion of this form/questions on the form is voluntary. The BOS Foundation is not responsible for information shared on the form.

Responses can be found here: https://docs.google.com/spreadsheets/d/11fG7eLffWNcwvtBbdre4_fg1FkE4snjzGX6gKqjSTMs/edit?usp=sharing