Participatory Design and the Making of Health: My TEDx Detroit Talk
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This document discusses participatory design in healthcare. It describes how the author collaborated with patients to design educational videos about food allergies after her son was diagnosed. This led to the videos being shared widely online and her son gaining confidence as an expert. The author advocates for participatory design and positioning patients as experts, makers, and collaborators. She founded HealthDesignBy.Us to bring together patients, designers, and healthcare providers to collaboratively design solutions.
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Participatory Design and the Making of Health: My TEDx Detroit Talk
- 1. Participatory Design and the Making of Health Joyce Lee, MD, MPH Doctor as Designer Twitter: @joyclee
- 2. My academic Identity: Associate Professor School of Medicine/ Public Health
- 3. My Alternative Online Identity
- 4. I tweet and blog about the intersection of health, technology, and participatory design http://goo.gl/jQdUxR
- 5. Disclosure: I have no formal training in design
- 6. Design was something I stumbled upon through a personal design experiment
- 7. B and S have life-threatening food allergies
- 8. The teachers need vital information about how and when to give the epi-pen
- 9. But this is a #design #fail
- 10. So we were inspired to make a Youtube video!
- 11. By “we” I mean the collective “we” since I am a #lazytigermother
- 12. Go to the 1st video on Ihavefoodallergies.tumblr.com!
- 13. I posted it online http://goo.gl/M9XZwS
- 14. His teacher shared it with the whole school
- 15. It went a little bit viral http://goo.gl/v3lE18
- 18. 1479 views! #designsuccess #proudtigermother
- 19. B has his own blog now http://ihavefoodallergies.tumblr.com
- 20. Check out video 2 of the trilogy on the blog!
- 21. Check out video 3 of the trilogy on the blog! http://goo.gl/M9XZwS
- 22. I also made a low-!delity version for the teachers
- 24. And additional information about “tricky” allergens
- 25. My Design Insights about the Production of Health and the Future of Healthcare
- 26. We were experts
- 27. We were makers
- 29. Patient as expert maker collaborator #futureofhealthcare
- 30. But to reach the #futureofhealthcare we need to overcome the #cultureofhealthcare
- 31. Expert “D!"#$r%&'(e) e*+,(t%-./ n!0.1a23,4t% Editorial hashtag: #whereareallthewomen
- 32. Maker “O567/c89#:f;<=/h8>?@h) pABCDs%3E4aFG.Hh!I?J b8&K(eL0M4g)N,Ol2N”
- 33. Collaborator “H!"#$h i% c&'($e) d*+,-r T. p/012n3”
- 35. I started collaborating with Matt Kenyon & John Marshall
- 36. Applying Design Thinking to Healthcare
- 37. Recognizing the wisdom and expertise of the patient
- 38. Allowing the patient voice to drive the identi!cation and prioritization of problems
- 39. Working with patients as co-designers in the creation of solutions for health
- 40. Pairing patients with designers to create tools inspired by the patient experience @jakiebones & @TheTrevorTorres http://goo.gl/3w3lIZ
- 41. “A” & @robokittycat http://goo.gl/STfnuX
- 42. Creating a culture of design in health Design = A Distraction A critical tool for the creation of health @showindshe http://goo.gl/xoZxK8
- 43. Maker Movement Do It Yourself (DIY) Learning by Doing Peer-to-Peer
- 44. The maker movement, a model for patient-centered participatory design? Maker Movement Participatory = Design
- 45. DIY = Expert Learning by doing = Maker Peer-to-Peer = Collaborator
- 47. We brought together a community of patients and health providers
- 48. Designers, Tinkerers, and Makers
- 49. To explore the amazing things that can be created by combining making and health
- 50. We created a collaborative innovation network called HealthDesignBy.Us to further this work Join us! goo.gl/mEmaiO
- 51. #currentstateofhealthcare Doctor to Patient Passive Solitary
- 52. #mydreamforhealthcare Patient to Patient Active Collaborative
- 53. B is thinking about making more prototypes
- 54. B extended his allergy work at the We #makehealth Fest http://goo.gl/bEY0Tg http://goo.gl/fPTFuF
- 55. B gave the opening remarks at the Fest too! http://goo.gl/bEY0Tg
- 57. HealthDesignBy.Us Twitter: @healthbyus FB: HealthDesignBy.Us My gratitude to our patient experts, Matt Kenyon, John Marshall, Patricia Anderson, Nancy Benovich Gilby, Emily Puckett Rogers, Scott Olson, Amy Cohn, Patricia Abbott, Kelly Parent, John Costik, Jose Gomez-Marquez, Emily Hirschfeld, Ghada Mustapha, Jacob Hendricks, Margot Robert, Xiaoying He, Trevor Torres, Nick Reid, Sam Oliver, Charles Woodson Research Fund, UM Provost, & the HealthDesignBy.Us virtual community